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Item Perceptions and Experiences of Privacy Among Persons With an Ostomy Receiving Treatment and Care A Mixed-Methods Study(2022) Akyuz, Elif; Erdemir, Firdevs; Ugurlu, Ziyafet; Ustundag, Cigdem; 36108229PURPOSE: The aim of this study was to determine ostomy patients' experiences and opinions on protection of privacy during treatment and care. DESIGN: Mixed-methods, descriptive correlational study. SAMPLE AND SETTING: The study sample comprised 80 patients with an ostomy receiving treatment and care in a university hospital in Turkey. METHODS: Data were collected using a form developed by the researchers based on literature review. The survey consisted of statements that examined demographic characteristics, experiences, and opinions of patients with an ostomy. RESULTS: For participants, 64.8% (n = 35/54) defined privacy from a physical dimension, 64.1% (n = 25/39) suffered from ostomy-related psychosocial discomfort, 48.7% experienced ostomy-related discomfort mostly during nursing care (n = 19/39), 48.7% (n = 39/80) were uncomfortable when their ostomy was seen by others, Approximately 56.3% (n = 45/80) thought that they disturbed other patients and their families during ostomy care, and 46.3% (n = 37/80) stated that healthcare professionals discussed information about their ostomy when other patients and their families were present. In addition, 21.3% (n = 17/80) opined that the physical conditions of patient rooms failed to provide privacy. Analysis revealed no significant relationship between education levels and reading the Patient Rights Regulation (P = .129). Analysis also found no significant relationships between age (P = .086), marital status (P = .382), educational background (P = .143), hospitalization experience (P = .427), and satisfaction with perceptions of privacy when receiving ostomy care. CONCLUSION: Patients with an ostomy reported physical and psychosocial problems concerning privacy, felt uncomfortable about the way information on their ostomy was discussed, and thought that physical conditions were not suitable for ostomy care. We recommend that healthcare professionals be provided with more training on psychosocial problems and privacy for patients with ostomy and that institutional policies and procedures be developed to address patients' problems.Item The effect of a mobile application on treatment adherence and symptom management in patients using oral anticancer agents: A randomized controlled trial(2021) Karaaslan Eser, Akile; Ayaz Alkaya, Sultan; 0000-0002-2405-0040; 33991868Purpose: The use of mobile health technologies in the management of oral anticancer agents (OAA) can be beneficial in terms of treatment adherence and symptom management. This study was conducted to investigate the effect of a mobile application developed for patients using OAA on treatment adherence and symptom management. Method: The study was conducted using a randomized controlled trial design, and it was carried out on 77 patients. Data were collected from the Oral Chemotherapy Adherence Scale (OCAS), and the Memorial Symptom Assessment Scale (MSAS). Data were collected at the beginning of the research, and face-to-face interviews were conducted after one, three, and six months. Patients in the intervention group were followed up for six months using the mobile application. Results: It was found that there was no difference between the intervention and control groups in the baseline OCAS mean scores (p > 0.05), and the mean score of the intervention group increased over the first, third- and sixth-month measurements (p < 0.05). It was found that there was no difference between the intervention and control groups in the MSAS mean scores (p > .05), and there was a decrease in the mean MSAS score of the intervention group between the third- and sixth-month follow-up (p < .05). Conclusion: The present study results showed that the mobile application is effective in managing symptoms and increasing treatment adherence. A well-designed mobile health application that increases treatment adherence, decreases symptom severity, and supports patients' self-management could be beneficial for patients using OAA. ClinicalTrials.gov Identifier: NCT04626830Item Validity and reliability of the Turkish version of the Patient Dignity Inventory(2021) Eskigulek, Yasemin; Kav, Sultan; 0000-0003-0361-7498; 34169810Objective The aim of this study was to investigate the validity and reliability of the Patient Dignity Inventory (PDI) in the Turkish society, which was developed to evaluate dignity-related distress in palliative care patients. Methods One hundred and twenty-seven adults with advanced cancer hospitalized in several clinics of two university hospitals were included in the study. The patients whose Palliative Performance Scale score was at least 40% were recruited to study. The data were collected with a patient demographic form, the Turkish version of Hospital Anxiety and Depression Scale (HADS-TR), and the Turkish version of the PDI (PDI-TR). The PDI-TR was finalized and back-translated after translating into Turkish and obtaining 10 expert opinions. Exploratory and confirmatory factor analysis, internal consistency, concurrent validity, and test-retest reliability analysis were performed. Results The Cronbach's alpha coefficient of PDI-TR was 0.94. Factor analysis resulted in a five-factor solution, and all items were loaded on factors. Factors were labeled as symptom distress, existential distress, self-confidence, dependency, and supportive care needs and accounted for 68.70% of the overall variance. The model's normed fit index, comparative fit index, and X-2/SD were found between acceptable range (0.90, 0.93, and 2.64, respectively). A positive and strong correlation was found between subdimension scores of HADS-TR and the total score of PDI-TR (r = 0.70 for anxiety subdimension; r = 0.73 for depression subdimension). The test-retest reliability was conducted with 32 patients within the sample two weeks after the first application, and no significant difference was found between the two application scores as the result of paired-sample t-test (p > 0.05). An intraclass correlation coefficient of test-retest reliability was r = 0.855. Significance of results PDI-TR was found to be a valid and reliable tool in palliative care patients in Turkish society.