Wos Kapalı Erişimli Yayınlar

Permanent URI for this collectionhttps://hdl.handle.net/11727/10753

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Author: search.filters.author.Gure, Merve Deniz Pak

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    Apparently We Cannot Live, We are like Infectious Zombies: A Qualitative Research on Personal and Familial Experiences of Health Workers in the Filiation Teams in Turkey during the COVID-19 Pandemic
    (2022) Karatas, Mustafa; Gure, Merve Deniz Pak; Duyan, Veli; https://orcid.org/0000-0002-0998-2552; 35658819
    This study aims to examine the experiences of health workers in filiation teams in Turkey. The qualitative research model has been used. 375 health workers have participated using a non-probability sampling method. The data were collected over the internet using the questionnaire. The data have been analyzed with the MAXQDA and various code-sub codes-segment maps and code matrices have been used. The results expressed in two dimensions: instrumental and emotional areas. It has been observed that issues such as burnout, loss of motivation, and future anxiety have often been coded due to poor working conditions of the filiation teams, lack of rewards, and other factors. They have been determined as experiencing social stigma along with fear of infecting their families, and therefore have problems with child care, visiting adult family members in the risk group. It is recommended to develop psychosocial support services and improve organizational conditions.
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    Evaluation of rare diseases policy performance of oecd countries using mcdm methods
    (2021) Ince, Ozgur; Gure, Merve Deniz Pak
    Objectives: Rare diseases affect less than one out of every 2.000 people, which means they are much less visible in the general population than common diseases. It has several negative consequences for both patients and healthcare systems. Because of this negative effect, healthcare programs and policies must be well-structured. Nonetheless, countries' efforts in this area should be assessed to ensure effectiveness. The aim of this study is to assess the policy performance of 18 OECD countries in terms of rare diseases using health policy indicators. Methods: The outcomes of rare disease policy are identified using multi-objective optimization based on ratio analysis, complex proportional assessment, and technique for order preference by similarity to ideal solution methods, which are among the most efficient selection and ranking methods. Results: Germany, France, and the Netherlands are among the countries with the strongest rare disease policies. Latvia, Greece, and Turkey are among the lowest-performing countries in the ranking. Conclusions: Performance evaluation studies for service delivery and policy arrangements in the field of rare diseases are necessary.